Feb 26, 2008
Right now Eli's favorite game is Ben 10: Protector of the Earth. WE just go t this game for Jaron as an early birthday/reward for being such a great kid. Jaron is such a helper and is my right hand man when Sean is not here. I get tons of comments on how much of a helper at school he is and what a great kid he is. Guess we are doing something right with him despite there are times at home that he just pushes our buttons.
Anyway about Eli. He is so funny to watch as he plays the game. When Accelerate is the character he stands and runs in place fast like the character does.
Fourarms he acts and says tough things like:"I'm gonna punch you out!" He does sound effects as well. It is absolutely hilarious to watch!
because he has such a hard time with his fine motor skills.
So what's with all the praise songs you might ask...well lets just say I have a lot to be thankful for this week. Also I find when you are in pain it is always good to listen to some good praise songs and take the focus off of you and put it on God. That is what I have had to do this week. I have been in terrible pain since Wed. night. My Florida knee ~ I call it that because that is where it was injured tripping down some steps ~ has tendinitis or at least that is what the doc thinks without doing any tests. It is over stressed right now because of not being able to use my other leg due to the surgery. Needless to say I have been in pain the kind of pain that makes you say things like just cut it off. Not really meaning it just being in pain. Yes I am taking my pain meds, icing it and staying off of it as much as possible. But that is pretty hard to do with 4 kids when your husband has to work. I have not had much sleep. In fact I think last night was the first night in 4 nights that I got more than 3 hours of sleep.
Praise songs are what soothes my soul. Gives me peace and I love listening to them as well as singing them. Sean my loving hubby has blessed me this weekend. He has been wanting to get me a MP3 player for sometime now. Tried at Christmas and for our anniversary and I just kept telling him no. I didn't see the point in having one. Well let me tell you something, he got me one...a Samsung P2 video/MP3 touch screen player. I LOVE IT! It is so much easier than dragging out the cds and using a big boom box...hmmm can you tell I was a teen in the 80's. I absolutely love this thing. It has the best sound, and the pictures for videos (music or movies) is as great as having a HD tv. It is great! I LOVE IT! Did I say that enough?
Anyway I have laid listening to my praise songs praying for relief and sleep. Last night I got some tonight I am not sure what is going to happen. I honestly had a good day but right now my Florida knee is giving me some problems. I can't get comfortable and I have taken all the meds I am allowed at the moment. I can't take anything till 4 am and its 1:30 am right now. It's just another late night for me. UGH!
Feb 22, 2008
Feb 21, 2008
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands.
The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandt's. But everyone you know is busy coming and going from Italy... and they are all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland. Now you can understand a little more of what its like to have a special needs child.
Anyway, Elmer is so much fun. His head is at least 2 feet in length. I am doing a lot of practicing with him. We purchased his legs so he can sit on my lap as well. His head is pretty heavy so every now and then he just goes to sleep (my arm starts aching bad! anyone that has done puppets will understand just how bad it can get! well imagine it at its worse. His head is that heavy!)
Elmer has become a great social friend with Kristofer. Kris really lights up when Elmer wakes up and comes out of his home (box). It's easier to talk to the puppet than to me sometimes. All the kids love Elmer and I can't wait to introduce him to the kids at church.
I talked with Kristofer's OT today about his behavior at home. I wanted to make sure he wasn't having problems at school with aggression and crashing into things and people. I got some great reports! YEA! He has learned to tie his gym shoes in one day. I have never worked on this with him. His OT showed him a few times and he got it! His fine motor skills and pencil grip has improved dramatically. All great news!
At his IEP meeting back in Dec it was suggested that we have Kris evaluated for autism. He seems to be borderline with his behaviors and social issues. Well this is nothing new for us. But to be honest I just haven't been ready to hear a diagnosis. Sean and I have been discussing it alot and I just asked Jennifer today point blank what do you think. Naturally she made sure to say that she is not a professional that diagnoses this type of thing but because Kris is so much like many of her autistic students that she works with she thinks he may be and highly recommended that we get him evaluated. SO that is what we are going to do. Just as soon as I am able to get out of the house on my own and we get our doctor situation fixed. We are in between doctors right now. It's a long story and unless you want details I would rather not discuss it on here.
AUTISM what does that mean? This is what wikipedia.org states: Autism is a brain development disorder that impairs social interaction and communication, and causes restricted and repetitive behavior, all starting before a child is three years old. This set of signs distinguishes autism from milder autism spectrum disorders (ASD) such as Asperger syndrome.
Its just a word, really. You see the Bible says He who began a good work in you is faithful to complete it. I am standing on that fact! I believe that regardless what a doctor may tell us that Kris is perfectly made and that God has a purpose and a plan for his life. I believe that God has been and will continue to heal Kristofer and one day he will be standing before a crowd of people giving God the praise for his complete healing! Kristofer is an amazing kid! Yes everyday is different. A few years ago he was fixed on dinosaurs. We ate, breathed and lived dinosaurs. The kid knows more about dinosaurs than anyone I know. He knew things way before we even let him watch educational tapes Discovery tapes on dinosaurs. He just blew us away with what he knew. He couldn't say basic words clearly like cat or dog but he could say brontosaurus and other long dinosaur terms. Now he is fixed on Transformers. So much so that he everything is about Transformers. I say this to share about yesterday.
Yesterday we surprised the kids with small little toys. Eli and Sara had birthday money they wanted spend and both wanted to share it with the older two boys. So Eli picked out Transformers for himself and Kristofer. Inside one of the packages was a advertiser with other Transformer products. Well Kris found one that he wants. So he gets dressed, gets his shoes and coat on and says come on mom lets go get it. Like I can just get up and go! Needless to say it took me almost an hour and a half to calm him down when I told him we couldn't go. SO today he comes home from school and for 3 hours he keeps saying, "Lets go to store and get my toy!" Now we don't just buy our kids things all the time. We just happen to have our tax check and wanted to bless our kids. It took me all 3 hours to get him to understand that we were not going to just go buy this toy that costs $30. He will have to wait till his birthday. Well then we had to get the calendar out and he says that is too long, it's making me tired. No I told him, He is making ME tired.
Now the little guy is laying next to ME. He is sick. Threw up all over the living room carpet. Then after he had gone to bed while sleeping proceeds to do it again. Now he is laying on towels on my bed and has thrown up 3 more times. Poor Sean had to give him a bath. Good bonding time for them.
A song comes to mind....
My Redeemer Lives
My Redeemer lives and I will see His glory as He works all things
Together for my good.
Whatever things occur of this I can be sure, I know my Redeemer lives.
Even though I walk through the valley, I will fear no evil He is with me.
And on the battlefield, although the pain is real, my struggles soon will fade as His glory is revealed.
(Repeat chorus twice)
Feb 19, 2008
isn't terrible it is actually just the starting of it. So that is good too, there are many things I can do to slow the process. So I have hope! It didn't go the way I had hoped but at least I am going forward and not backwards with this knee.
Now as for my left knee...that is a different story. It was my bad knee till I really injured the right one. It was doing so much better until I had the surgery. Now it is so aggravated I can barely walk. So I had it looked at today as well. Without the xrays and MRI I probably will need later on the doc says as of right now it looks like I have tendinitis...severe case. So I am now icing that knee and taking meds for it instead of my surgery knee. Thank god for wheel chairs. I would not be able to do much at all even in our house where it not for this wonderful wheel chair!Once I get past all this crazy knee stuff I may talk Sean into getting a gym set or even a gym membership.
I did enjoy getting out of the house. After the doc apt. we headed to WalMart. I was wheeling around in the wheel chair we have rented. I have to tell you if you want a good work out for your arms go wheeling through wal mart and go around the whole super store. My arms are so stinking sore! A good muscle sore though. It was fun today. Sara was being my helper and was
"pushing" me through the store. We went shopping for dresses and shoes for her. Her favorite things to do as Sean and Eli went grocery shopping. I got a lot of stares but I sure did enjoy getting out. I have to tell you when you are no longer mobile or independent any thing that seems like freedom such as shopping is a treat! It is no wonder all the elder men/women who are mentally fine but physically not and are put in nursing homes get depressed. I know understand why my grand-MOM was so depressed all the time. She wasn't able to drive and just go the last few years of her life. When you loose that independence it is a hard thing to deal with. I know! Although eventually I will get it back I now wish I had taken the time to understand what she was going through more and been a little more willing to just take her anywhere she wanted to go. She is now waking on streets of gold but if she could hear me now...SORRY MOM!!! Be good to your aging parents and grandparents! It is depressing when your independence is taken away...willingly or not!
Feb 18, 2008
For some reason this statement really struck me as interesting. Does life all boils down to grace? Yes I believe it does. The Bible tells us that it is by grace that I am saved. It is through Jesus' death on the cross that broke the bonds of sin for all that will believe in Him. Easter is coming early this year. In most cases Easter comes in April this year it comes early and falls in March. This year I hope you will take the time to worship the creator of the universe. He alone created the mountains and if He has a mountain for you to climb then He will be present to see you up and down that mountain. Hold on to Him ad you face the mountains in your life and remember it all comes down to one word...GRACE!
Feb 17, 2008
My kiddos have been sick specially Sara and now Eli has a cold as well. Eli was being so pitiful. I asked him if I could help make him feel better. He said, so sweetly, " I want Deedee to come make me better!" It was just so pitiful. So we called Grandma Deedee and he told me he felt so much better just by listening to her voice and talking to her. Sometimes we want mommy, daddy or even better..our grandmas!
Then later tonight Sara and I were talking while she was drawing pictures. She said she was drawing pictures for her Aunt Nennie. Then she says to me, oh Nennie has a boy ... I said you mean Uncle Neil..He is her husband. She says, "oh yea, and pauses and then says why doesn't he have hair? It was so cute.
Update: Tomorrow marks my 4 weeks Post Op date. I am doing so much better. Over the weekend I was adjusting my leg to get comfortable and something popped. It didn't hurt but the next morning I had pain I haven't had in a while. I could figure it out but today I realized it had to have been the way the brace was laying against the outside of my leg when I was sleeping. It feels so much better. I am even seeing an improvement in my ability to stand when taking a shower without the brace on. It is still very wobbly but I can tell a difference in the strength. I am so hopeful that the doc will release me to start ROM and be more weight bearing. We shall see. I will post on Tuesday about what I am told after my appointment. The incision is looking really good. It is not the best closure. It looks like a terrible sewing or stapling job. Definitely not going to look pretty with shorts even a swimsuit. All well as long as I can walk without it giving out and not be in pain I will be so much happier.
Feb 15, 2008
Feb 14, 2008
Instead of going into all that mushy stuff about today I just wanted to wish everyone a Happy Valentine's Day and share a lovely VDay Memory! But before I do that I have to share...I DID IT! I finally did a SLR (straight Leg lift!) This is a huge step forward in the process of healing for my knee! What a great VDAY gift!
SO my favorite VDay memory is from 1997. It was our first Vday asa married couple. Sean was a reported for the Morehead News (paper) in Morehead Ky and was also the pastor for Chi Alpha Christian Fellowship ( college ministry of the Assemblies of God-reason and how we met!). Anyway he had just done a very nice article about one of the owners/president of a local bank. A very nice and well to do man. He wanted to treat us out for dinner and told Sean to pick a night that we could go to dinner. It wasn't that he wanted to take us out to dinner he wanted to send us to dinner on him. So Sean picked Vday night. We went to a VERY expensive restaurant that was at the top of a very large bank in Lexington KY. I have no idea what bank just that it had a wonderful view of the city.
We instantly felt out of place....you know the movie Pretty Woman when Julia Roberts is sitting in that very fancy restaurant unsure of what fork to use...that was what it was like. It was a 5 course meal. I can't tell you what we ate its been so long ago but I can tell you it was delicious. Have you seen the movie, Princess Diaries when they eat the sorbet all at once. Well we had that experience too. Oooo it was so cold! We sat amongst very wealthy business men and woman that night. Both of enjoyed that night and when we talk about it laugh! It was the best Valentine's Date I have ever had! It was fun to feel pampered and treated like royalty as well. No one knew that we were living in a shoe box of an apartment or that we could have never afforded to be there that night! When we were leaving we picked up a brochure that listed the costs of the evenings dinner. It was a prepaid event and it was $75 a plate. Which means it cost $175 for us to eat dinner that night.
Now I am not sure if the food was that great to cost that much but the experience alone was well worth it. We made sure to send a thank you note to that nice man. It is and will always be my favorite Vday memory!
I hope your Valentine Day is a memorable one and that you take the time to tell your loved ones how much they mean to you!
Feb 13, 2008
Feb 12, 2008
The next two pictures are a before and after shot of the once beautiful tree we have in our back yard. The first is a fall picture from Nov 2006 when we were voted in and accepted as the new pastors of the church. The second picture is what is left of that tree after the ice has had its way with it.
Feb 11, 2008
Well I get to the hospital, get checked in and waited maybe 10 minutes and the tech comes out to get me. She proceeds to ask me if Icame early because of the storm that is coming our way. A winter storm as it is called...meaning we could get snow, ice, sleet and freezing rain. Bad stuff when mixed together. I looked at her and said no that I have been called by a woman on Thursday telling me my apt was at 11:15. She tells me normally it is a man (Doug) that does the apt calls so she was confused. I looked at her and said well maybe an angel called and changed it so that I could get home before it got bad outside. She just smiled.
Now I believe in angels and God was definitely looking over us and preparing today for us because not only did I only wait 10 mins to get it (norm wait is at least 30 mins) and we had Eli & Sara with us but as we left the hospital the storm started. Sleet every where and it took a matter of 3 minutes for the roads to start getting slick and dangerous.
Unfortunately we did not get to go shopping but we did grab lunch as we drove home. I was a short outing but it was nice to get out of the house. Another reason I believe God had a hand in today's events ... had my original apt time been correct we would not have been home to get the boys. On our way home I thought I better call home and check our messages, good thing I did. WE were about 5 minutes away from home when we learned that the boys were being released from school within the next 15 minutes. Had I not called we would not have gone straight home and the boys would have walked home and been stuck outside in the freezing cold. God was not only watching out for us but for our kids as well.
Next Monday I go to see the surgeon and I will be 4 weeks post op! I am so hoping that he will release me to do ROM exercises. Until then I can now rest easy knowing that I am clot free and no longer taking terrible meds.
Out side is looking more like a winter wonderland again. We have about 1/4 inch of ice on the vehicle windows which means the ground is probably worse. According to http://www.weatherunderground.com/ we are looking at 2-8 inches of snow and possibly up to 3/4 inch of ice falling before the snow comes. We are hoping that we will be spared the ice storm so that we do not lose electric or our heat! Keep us in your prayers~
Today as all days God is worthy of our praise~
The song I have sang all day is this:
Words and Music by JAMES HUEY
When I think about the Lord
How He saved me, how He raised me
How He filled me with the Holy Ghost
How healed me to the uttermost
When I think about the Lord
How He picked me up and turned me around
How He placed my feet on solid ground
It makes me wanna shout
Hallelujah, thank You Jesus, Lord, You’re worthy
Of all of the glory, and all of the honor
And all of the praise
Feb 8, 2008
Feb 7, 2008
15 Things to Pray for with Your Children
2. Pray for your child's safety, and for the safety of
all children going to and from school and during their school day.
3. Pray for your child to have a keen awareness of
4. Pray that your child will be willing to work hard to
5. Pray that your child will be a blessing others.
6. Pray that your child will find pleasure in learning
7. Pray that your child will find good friends.
9. Pray that your child will make wise choices and good decisions.
10. Pray with thanksgiving for the blessing of a good education.
11. Pray for children that may be causing problems
12. Pray for your child's future spouse.
13. Pray that God will show your child one that needs a friend.
14. Pray for your child's teacher.
15. Pray for your school's principal to be a Godly leader.
Feb 5, 2008
Regardless of your political, religious or personal beliefs, today is a huge day in history. I never in my life thought it was possible to see a women running for president or even a black man. I was told so many times growing up, you can do anything and one day you will see a women in the White House. Well despite the fact that I do not agree with either of those two candidates it is amazing to me to see this. What a place in history America is in!
Today is Super Tuesday...most of the states will be voting. Mine is one of them. If I can persuade any of you to get out there and make your vote count GO VOTE!!! I am so tired of hearing people bashing our President. He may not be perfect but lets face it does he really have that much control when the House and Senate have to approve what the President proposes? Honestly if you want to make a difference VOTE! If everyone would stop and think about each President we have had I guarantee that each one has had ton of criticism~ Not a single president we have had has been perfect. Oh, some stand out for their courageous stands or what they took our country through, but all have been criticised.
GO VOTE! Your vote does count! Just remember the hanging chads in Florida and yes at that time we were living in Florida. We were the brunt of many jokes but I voted then and I will vote this time!